NOVATO, Calif., Feb. 29, 2016 -- Raptor Pharmaceutical Corp. (Nasdaq:RPTP) today announced its support of Rare Disease Week, beginning February 29, 2016, with a series of activities and events that will celebrate advancements in the field of rare and orphan diseases and support and strengthen patient communities. The company joins Rare Diseases Europe (EURORDIS), the National Organization for Rare Disorders (NORD), Global Genes and the Canadian Organization for Rare Disorders (CORD) to observe this year’s theme of “Patient Voice - Join Us in Making the Voice of Rare Diseases Heard,” which recognizes the millions of people whose lives are impacted each day by a rare disease. Raptor is also proud to be a corporate sponsor of Rare Disease Legislative Advocates’ Rare Disease Week events in Washington, D.C.
“We are excited to participate in this global celebration of individuals living with a rare disease and to help increase awareness that rare diseases are a significant public health priority,” said Julie Anne Smith, Raptor’s President and CEO. “Raptor is committed to developing innovative medicines and advocating for legislation that supports equal access to treatment and care for people with rare diseases.”
During the week of February 29, Raptor will sponsor and participate in several Rare Disease Week activities around the world to pledge its support for those with rare diseases, including:
- Rare Disease Legislative Advocates (RDLA) “Rare Disease Week on Capitol Hill” from February 29 - March 3 in Washington, D.C.;
- Rare Disease Day activities for the National Organization for Rare Disorders, the Canadian Organization for Rare Disorders, and corporate sponsor for the EURORDIS Black Pearl Gala in Brussels;
- Rare Disease Day activities partnered with the Boomer Esaison Foundation;
- Congressional Rare Disease Caucus Briefing on March 3.
About Raptor Pharmaceutical
Raptor Pharmaceutical Corp. is a global biopharmaceutical company focused on the development and commercialization of transformative therapeutics for rare, debilitating and often fatal diseases. With its recent acquisition of QUINSAIR, Raptor plans to develop MP-376, the pharmaceutical product known commercially as QUINSAIR, in cystic fibrosis and intends to pursue clinical programs in 2016 in bronchiectasis not associated with cystic fibrosis and to do work in preparation to support further clinical development in lung infections associated with nontuberculous mycobacteria. In addition, Raptor is developing RP103, known commercially as PROCYSBI, in multiple therapeutic areas such as nephropathic cystinosis and Huntington's and mitochondrial diseases including Leigh syndrome. Raptor holds several orphan drug designations, including orphan drug exclusivity for nephropathic cystinosis in the U.S. and EU. For additional information, please visit www.raptorpharma.com.
COMPANY CONTACT: Kimberly Lee, D.O. Vice President, Corporate Strategy and Communications Raptor Pharmaceutical Corp. (415) 408-6351 INVESTOR CONTACT: Westwicke Partners, LLC Robert H. Uhl Managing Director (858) 356-5932 [email protected] MEDIA CONTACT: Monica May Canale Communications (619) 849-5383 [email protected]


Star Entertainment Leadership Shake-Up Deepens as CFO and COO Exit Amid Ongoing Restructuring
Waymo Plans Safety and Emergency Response Upgrades After San Francisco Robotaxi Disruptions
Leapmotor Targets 4 Million Annual EV Sales as Global Expansion Accelerates
TSMC Honors Japanese Chip Equipment Makers With 2025 Supplier Awards
Sanofi to Acquire Dynavax in $2.2 Billion Deal to Strengthen Vaccines Portfolio
Warner Bros. Discovery Shares Slide Amid Report of Potential Paramount Skydance Lawsuit
Nvidia and Groq Strike Strategic AI Inference Licensing Deal
Trump Administration Probes Corporate DEI Programs, Raising Questions for Google Stock
FTC Praises Instacart for Ending AI Pricing Tests After $60M Settlement
China’s Iron Ore Buyer Pressures Mining Giants as New Supply Shifts Market Power
Saks Global Weighs Chapter 11 Bankruptcy Amid Debt Pressures and Luxury Retail Slowdown
Sanofi to Acquire Dynavax in $2.2 Billion Deal to Strengthen Vaccine Portfolio
California DMV Proposes New Safety Rules for Autonomous Vehicles After Waymo Incidents
Nvidia to Acquire Groq in $20 Billion Deal to Boost AI Chip Dominance
South Korean Court Clears Korea Zinc’s $7.4 Billion U.S. Smelter Project, Shares Surge
Hyundai Recalls Over 51,000 Vehicles in the U.S. Due to Fire Risk From Trailer Wiring Issue
Eli Lilly and Novo Nordisk Battle for India’s Fast-Growing Obesity Drug Market 



